Although there is anecdotal evidence from multiple myeloma patients and their oncologists suggesting that many patients face challenges with accessing care, very little has been done to quantify these access issues. To address this lack of information, The Leukemia and Lymphoma Society (LLS) and Avalere Health are launching the first ever survey of the barriers myeloma patients face when trying to receive care.
Those barriers might include:
· Problems finding an oncologist that is knowledgeable about myeloma;
· Issues related to transportation to and from appointments;
· Concerns with the cost of treatment and insurance coverage.
The result of the survey will form the basis for a public policy proposal to address the specific needs of myeloma patients. Accordingly, LLS and Avalere are asking providers to encourage myeloma patients to participate in this groundbreaking study. If you know of patients interested in participating, please ask them to visit http://lls.avalerehealth.net/MM/
Patients can be assured that all responses will remain anonymous and confidential. LLS and Avalere will share the results of the survey with participants and encourage patients to forward this opportunity to other interested myeloma patients. Myeloma patients in need of information or support services can also contact the LLS Information Resource Center at 800-955-4572 or online at www.LLS.org .
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